Oct 082025
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

4pm to 4.15pm

Tuesday 14th October

Outside the Senedd (Welsh Parliament) in Cardiff

 

The words "We want an Independent PIP Review" in bold and black text, with Independent highlighted in red. On the left there is a tear-out effect of a greyscale photo of a disability protest, and a red-tinted photo of Stephen Timms, the disability minister.

The Disability Minister Stephen Timms was forced to promise UK parliament that there would be no more PIP disability cuts until a review had been co-produced with disabled people.

He has broken this promise.

Disabled people want to run our own, independent, and democratic PIP review.

Disabled People Against Cuts Cymru (DPAC Cymru) will be handing in our open letter with 700 signatures from individuals and organisations. We are calling on the Welsh government to do its part and practically support Disabled People’s Organisations to carry out the review.

Placards, in English and Welsh, with the Disabled People Against Cuts Cymru logo, will say:

“No disability cuts! Disabled people want to run our own independent PIP review. We’re asking the Welsh Government to do its part!”

 

If you are able to, would you consider…

Joining us at the lobby in person on Tuesday 14th.

This will involve: being outside for 15 minutes with placards and possibly a megaphone.

Ask your Senedd member to meet us there.

Let people knowour Google Drive has bilingual social media graphics and placard text, as well as alt text for social media graphics accessibility.

We welcome all support!

 

Access requirements

Is there anything that would help you take part? Is there anything we can do better? Do you have any access requirements? Let us know! Email <dpac.cymru@gmail.com>

A limited number of PPE masks will be available for free.

 

 

Social media graphics

This is a graphic advertising a protest. The top half of the image is a picture of the Welsh Government building (the Senedd) with a blue tint, and the bottom half is a ripped paper effect. Text on the top half, in big letters, says: “Protest (Senedd Disability Lobby)”. On the bottom half, text says: “We will be handing in 30 pages of signatures. No disability cuts! Disabled people want to run our own, independent, PIP review.” In bold, it says “We’re asking the Welsh Government to do its part. Tuesday 14th October 2025.” Next to a red map pin, it says: “Cardiff, outside the Senedd, 4pm to 4:15pm”. To the right is the Disabled People Against Cuts Cymru logo, which is a red, pink, blue, green wheel being held by four hands of different skin tones. At the center of the logo is an upside-down black triangle bearing the letters D P A C and the word Cymru.
A graphic of the DPAC Cymru logo. There is the main DPAC logo to the left, which is a red, pink, blue, and green circle being held by four hands of different skin tones, with the words "disabled people against cuts" surrounding it, and an upside-down black traingle in the middle bearing the letters D P A C. On the right is the word Cymru (pronounced cum ree) (C Y M R U) in large letters, and the background of the letters are cutouts of the Welsh flag. Above Cymru (pronounced cum ree) is written the words Disabled People Against Cuts. Below Cymru (pronounced cum ree) are the words Rights, not charity, and the equivilant phrase translated into the Welsh language.
Sep 132025
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Calls for an independent PIP review with UK minister under fire

A Welsh disability group is calling for an independent review of Personal Independence Payments (PIP).

Disabled People Against Cuts Cymru (DPAC Cymru) has accused the disability minister Stephen Timms of failing to properly lead his own review into the disability benefit, saying that “co-production is not taking place as promised.”

Speaking exclusively to LBC’s Welsh Correspondent Caitlin Parr, the group’s comments follow the Minister of State for Social Security and Disability, Sir Stephen Timms MP, meeting with the Welsh Government Disability Equality Forum on Tuesday 2nd.

LBC news reported that DPAC Cymru had long fought for disabled people’s voices to be heard in changes to welfare reforms, but were concerned that the minister, despite promises to engage widely over the summer, had so far left Welsh disabled people out of discussions around the review, outside of those forum meetings.

DPAC Cymru claims that Timm’s attendance at those recent forum meetings is “far too little and far too late for Welsh disabled people after months of stonewalling from Timms,” and said they were frustrated by “more promises but no action.”

Ben Golightly, from Swansea, is a coordinator for DPAC Cymru. He told LBC, “he [Timms] agreed in that meeting that it was important for Welsh disabled people and Welsh disabled people’s organisations to be heard. He was meant to talk about how he was delivering co-production. It was his job to do it. And he had no real update, because he hasn’t been doing that job.”

Despite promises from government ministers, DPAC Cymru say that co-production has not taken place, and they are “back to square one.”

Ben said, “We had hoped that after a major defeat in parliament that when he [Timms] promised co-production with disabled people, that we wouldn’t have to go through all of this again. There is so little trust in the way the government has treated disabled people that we need an independent review, led by disabled people, and Stephen Timms and the government should turn up and listen, but they should have no say over how it’s run because they’ve shown, throughout several months, that they’re unable to do it.”

Lee Ellery, an independent disability activist and lead press coordinator for DPAC Cymru, who has Cerebral palsy quadriplegic, agreed, telling LBC news it’s time more Welsh voices were heard.

Lee said, “people with disabilities, particularly in Wales, are left to the bottom of the pile so to speak, and we should be at the forefront of everything. I’m worried about what the result of the [PIP] review might come out to say, if the person who’s leading it doesn’t understand the whole process.”

LBC news reported that “the Timms review into PIP assessments is expected to conclude in Autumn 2026, when changes already decided on for new PIP claimants will come into force.”

DPAC Cymru’s calls for an independent review, made in an open letter released last Monday, has already received wide support, collecting 600 signatures and the support of representatives of more than twenty-five organisations.

Comments collected from respondents talk about their feelings of hurt, being “belittled,” “completely disregarded and isolated,” and the “harm and loss of trust” caused by Timms and the government.

Signatures on the open letter are open until the end of September.

Sign here

A notice graphic with a red tinted photograph of Stephen Timms as the background. Title text to the left of him reads: "We want an independent PIP review" with emphasis on the independent. A divider then separates the next header text that reads: "Nothing about us, without us!", followed by another divider. Body text then reads: "Please sign and share our open letter!" with an arrow pointing to a link: "bit.ly/independent-pip-review". The DPAC Cymru logo sits at the bottom of the screen.
Jul 022025
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

On 9 July, MPs have a final vote on the Universal Credit and Personal Independence Payment Bill.

In spite of the concessions made by Labour yesterday, we are still recommending that you contact your MP and ask them to vote against the bill at third reading.

We know that only 49 Labour MPs rebelled in the end. But we also believe, given the speeches being made in the Commons yesterday, that a lot more would have rebelled if Timms had not announced at the last hour that they were going to remove the 4-point rule from the bill.
It may be, if your MP voted in favour of the bill, that after they have had time to consider things they will wonder if they made the wrong decision in the heat of the moment.
Below are some of the reasons you might want to give for voting against the amended bill, or you may have some of your own. The important thing is that you make it clear, if you believe it is the case, that the bill still harms disabled people and it should not go ahead.

Hundreds of thousands of future disabled claimants still be harmed by their UC health element being almost halved, compared to current claimants, and then frozen.

The severe conditions criteria are extremely hard to meet. The requirement that claimants meet them “constantly” rather than “for the majority of the time” is unreasonable and harsh. Claimants with degenerative conditions such as Parkinson’s, multiple sclerosis and muscular dystrophy generally follow a slow path of decreasing ability, with periods of remission. Long after it is clear they will never work again they will have periods of remission. At the moment, a claimant in these circumstances would get the full health element. But from April 2026, new claimants in the same position will only get around half this amount.

Claimants have not been consulted on the changes in the current bill at all.

The Bill has become a confusing shambles with little resemblance to the original text. MPs will have very little time to study the ever changing government amendments before they vote.

A committee process that should take weeks or even months, looking at amendments and getting advice from experts, will all be done in a single afternoon on 9 July, as the government rushes the bill through.
Jul 012025
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Stephen Timms, the Minister of State for Social Security and Disability, has now replied to the letter from Disabled People Against Cuts sent three weeks ago.

Our letter raised serious concerns with the quality and fairness of the so-called “consultation” being carried out on disability benefit cuts. We asked for the consultation to be extended, and for urgent action to address the failings.

Stephen Timm’s reply, available here, does not address any of the concerns, and he refuses to extend the consultation process.

The minister has not yet replied to the letter from DPAC Cymru, also sent three weeks ago, requesting a meeting following the failures of the DWP in organising the only in-person consultation on the disability cuts in Wales. That letter said:

We are concerned you still do not understand the failures of your department. We have had no indication from you, or the DWP, whatsoever, in any statement, that you understand that the consultation was organised in a way that was unsuitable for disabled people.

Given Timm’s lack of understanding of his department’s failures, we have no confidence in him leading a wider review into PIP.

Jun 292025
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

1st July 15:00 to 17:00. Bedford Square, Exeter.

This is a poster for a protest in Exeter.

At the top is the DPAC logo, a red, pink, blue, green wheel held by four hands of different skin tones, with an upside-down black triangle in the center bearing the word Exeter.

Underneath, on a red and white stripe design, is large text that says Kill the Bill Before it Kills Us. Above and below it says: Bust Cards, chants, satements for Starmer, Myth-busting, speeches, community first.

Underneath are two QR codes. The one on the left is labelled Email templates for your MP and the speaker of the house. The one on the right is labelled Facebook event page.

Underneath is large text that says 1st July 15:00 to 17:00. Bedford Square.

In medium text, it says that Masks are requried for those who are able to use them, limited spare masks and bottles of water provided.

Kill the Bill Before it Kills Us!

Bust Cards, chants, statements for Starmer, Myth-busting, speeches, community first.
Masks are required for those who are able to use them, limited spare masks and bottles of water provided.

Links

Facebook event

Email templates for your MP and the speaker of the house.

Jun 262025
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net
A graphic with a light blue background and a megaphone. Beaming from the megaphone, as if it is the sound, is a yellow background. On the yellow background are the words in red: Act now. Speak Up. Fight Cuts. In black are the words: Write to your MP about Welfare Cuts.

Dear DPAC members and supporters,

The vote on the welfare cuts bill is next week, we need to make sure MPs know – do not vote for these cuts!

We need as many people as possible to be emailing their MP and telling them exactly why they should vote against the bill next week and reject any concessions. They need to know, no concession is enough, the only option is to vote Against the bill next week.

Inclusion London have put together a template letter that anyone can use to email their MP, all you need to do is put on your name and postcode and it will send it for you.

To find the letter, please go to this website: https://www.inclusionlondon.org.uk/campaigns-and-policy/act-now/stand-up-against-cuts-to-disability-benefits-write-to-your-mp-today/

These cuts are a cruel attack on disabled people, that would push 350,000 of us into even further poverty, we’re telling MPs: vote against these cuts and join the reasonable amendment!

Jun 262025
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net
With the first vote on the disability cuts bill due Tuesday 1st July, we need maximum pressure.
One way to do this is to print out a DPAC window poster demanding that your MP votes against!
DPAC Cymru (DPAC Wales) have produced templates for you to print out at home. They have also produced some versions with some MP’s names already on.
Download a template or a poster from Bit.Ly/DPAC-Cymru-Window

Don’t forget to email your MP. Why not email them a picture of the poster in your window!

A window poster.

In large, bold black text, it says: defeat The Labour Disability Cuts Bill.

Labour is written in dark red.

It then has a line to write your MP's name.

Underneath this it says "Vote no to show that you care". No is in red. Care is underlined in red.

To the left is the DPAC logo. It is a red, pink, blue, green circle being held by four hands of different skin tones. In the center is an upside-down black triangle bearing the letters D P A C. Around the circle are the words Disabled People Against Cuts.

Underneath, it says: Download your window poster at Bit.Ly/DPAC-Cymru-Window

DPAC Cymru social media:

Facebook: Disabled People Against Cuts – Cymru
Facebook: Swansea DPAC:
Instagram: dpac_cymru
Bluesky: @dpac-cymru.bsky.social
Jun 222025
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net
A graphic of the DPAC Cymru logo.

There is the main DPAC logo to the left, which is a red, pink, blue, and green circle being held by four hands of different skin tones, with the words "disabled people against cuts" surrounding it, and an upside-down black traingle in the middle bearing the letters D P A C.

On the right is the word Cymru (pronounced cum ree) (C Y M R U) in large letters, and the background of the letters are cutouts of the Welsh flag. Above Cymru (pronounced cum ree) is written the words Disabled People Against Cuts. Below Cymru (pronounced cum ree) are the words Rights, not charity, and the equivilant phrase translated into the Welsh language.

The first vote in parliament is 1st July. Here’s a helpful guide to some things people in Wales can do NOW to help defeat the welfare cuts bill.

These actions are specifically customised for people in Wales, and includes lobbying the Welsh government. However, people not living in Wales might still find the resources useful with small adaptations.

Print out a window poster

Stick it in your window, or on workplace or community noticeboards.

Ready-made

Make your own!

Send yours in!

Contributions welcome! Please send it in to swaneadpac@gmail.com and/or dpaccardiffandvalleys@gmail.com

 

  1. Write to ALL of your elected representatives.

Follow each link for instructions and template letters.

 

  1. Write to the press

 

  1. Get involved!

Here are some ideas (there are many more ways to get involved in addition to those listed here):

  • Share this resource!

    • Bit.Ly/DPAC-Cymru-Defeat-The-Bill
  • Research joining a political party that aligns with your views.

 

Jun 102025
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net
Portrait of Stephen Timms MP
Disabled People Against Cuts (DPAC) has today written to Stephen Timms, the Minister of State for Social Security and Disability, to raise our serious concerns with the quality and fairness of the so-called “consultation” being carried out on disability benefit cuts.
We are asking for the consultation to be extended, and for urgent action to address the failings.
We urge the government start again on welfare reform, listening to disabled people and carers in a genuine process of co-production.
This is what we said in our letter:
Dear Stephen Timms,

I am writing to you on behalf of Disabled People Against Cuts (DPAC) to urgently raise concerns regarding the accessibility of the consultation on the benefits cuts proposed in the March 2025 Green Paper. In light of the limited time available for the consultation which is due to close on 30 June 2025, you are asked to take urgent action to address our concerns, confirm what steps are being taken and to extend the time available for disabled people to engage with the consultation given the accessibility issues they have faced to date. In order for the consultation to fulfil its purpose. Disabled people who are likely to be affected by proposed benefits changes, must have a proper and meaningful opportunity to engage with the consultation and accessible arrangements must therefore be urgently made to facilitate their proper participation in the consultation.

Our concerns

The face-to-face consultation in Cardiff on the 3rd June was cancelled less than two days after the venue was announced, with only one working day left before the event.

The DWP has claimed that the Cardiff venue cancelled the meeting at the last minute yet the venue itself was already inaccessible to disabled people. No transport to the venue was offered by the DWP for those who wanted to take part.

The booked venue was only revealed at the last minute. This was despite disabled people asking multiple times, over weeks, for information so that they could plan journeys, accommodation, and access requirements. The venue was far out of the centre of Cardiff, and completely inaccessible for many disabled people, especially at such short notice. It would have meant a wheelchair user travelling 1.6 miles unassisted. Shockingly this was the only face-to-face consultation event for the whole of Wales.

People at other DWP consultations in England have had similarly poor experiences. For example, lack of accessibility of the venue led to only 9 out of 15 people managing to attend the in-person consultation event in the South West.

The in-person consultations did not cover the North of England – Carlisle and Newcastle were completely missed out. For Wales, the North and South are poorly connected so any meaningful consultation would require not just an event in the South but another in the North.

In Northern Ireland no face-to-face consultations appear to be taking place at all and the date of the online consultation was only announced last week.

We have also received concerning feedback about the online consultations and the understanding of those conducting the meeting. One attendee reported:

It was also clear that not all participants fully understood the consultation questions or their implications, particularly those without background knowledge of the benefits system. This raises significant concerns about the quality and reliability of the feedback being gathered. At one point, the facilitator was unable to explain New Style ESA or JSA, and I had to step in to clarify how these benefits work, especially for those who do not qualify for income-related support. It was concerning to witness such a knowledge gap from someone facilitating a consultation on welfare reform.

Although we were told that all feedback would be recorded — even on topics not officially included in the consultation — it is unclear how that information will be used or whether it will influence policy development in any meaningful way.

The impact of the failure to make arrangements for accessible and meaningful consultation meetings

Only having online consultations and/or not having sufficient and/or accessible face-to-face consultations is unacceptable because, as I’m sure you’re aware, at least one-third of disabled people do not have access to the internet or the skills needed to take part in an online meeting. This obviously means that many people who will be most affected by the Government’s planned cuts to social security payments will be totally excluded from taking part in any consultation events.

We are concerned that the consultation not only doesn’t deal with many of the policies that are most likely to affect disabled people (as it only deals with 12 out of 22 policies) but fails to properly engage disabled people on those limited topics. We are also concerned that full impact assessments which would inform engagement with the consultation are not available and will not be made available during the course of the consultation.

The whole process to date seems inaccessible, chaotic and incomplete and given how few people are being consulted, both virtually and in person, we are extremely concerned about how representative this process is and whether it meets even the most basic standards of engagement with disabled people and their advocates.

Furthermore it is DPAC’s view that the whole process is flawed and is non-compliant with Articles 4 (3) and 33.3 of the UN CRPD and General Comment 7.  It also violates the Gunning Principles and the requirements to make reasonable adjustments under the Equality Act and is therefore potentially unlawful.  The only meaningful remedy is to withdraw the proposals and meaningfully engage with disabled people and our representative organisations to ensure all government proposals are compliant with the UN CRPD and equality legislation and ensure progressive realisation of the articles as well as compliance with equality duties.  Failure to address these flaws may result in legal action and sanction from the disability committee of the UN.

It is essential that the government start again on welfare reform, listening to disabled people and carers in a genuine process of co-production.

In light of the concerns outlined above and the limited time available, we invite you within 7 days i.e.  by June 16th to confirm:

1.     What steps are being taken to ensure that online and in-person consultation events are accessible and available to affected disabled people across all relevant regions. This should include ensuring accessible venues, across a range of regions as well as adequate notice to allow for attendance arrangements to be made.;

2.     That the time for engagement with the consultation will be extended by at least 4 weeks, to reflect the delays in making accessible arrangements and allow meaningful engagement with disabled people.

We look forward to your response by June 16th.

 

Linda Burnip

On behalf of the DPAC steering group

c.c. Debbie Abrahams, Chair of the Work and Pensions Select Committee,

Katie Farrington, Director General Social Security, Disability and Pensions

Helga Swindenbank, Head of Disability Services

Jun 032025
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

The DWP have cancelled the only in-person consultation event on the disability cuts for the whole of Wales, and do not plan to run another.

They did this after announcing an inaccessible venue at the last minute, in what we believe to be a clear example of disability discrimination.

The consultation was always going to be unfair, given half the proposals – the most important half – were off the table for discussion on day one.

We are demanding that there must be no vote in the House of Commons on disability cuts until a full and genuine public consultation has been carried out in Wales.

Please sign our open letter, and ask your MP or Member of the Senedd (Welsh Parliament) to sign too. You can sign, and ask your MP to sign, even if you don’t live in Wales.

Below is a template letter for contacting your MP or MS.

Find your MP or MS using WriteToThem, Find your MP, and/or Find a Member of the Senedd (in Wales)

 

Template letter

[Please use this template as a starting point and use your own words as much as possible.]

Dear [MP or member of the Senedd]

 

I am writing as your constituent to ask that you support an open letter demanding that there must be no disability benefit cuts vote in the House of Commons until Wales has had a full and genuine consultation – #NoVoteWithoutWales

The DWP have now cancelled the only in-person consultation event on the disability cuts for the whole of Wales, and have communicated that they do not plan to run another. Instead they are suggesting an online-only event at the end of the month, probably after any vote has already happened. This isn’t good enough.

The DWP cancelled the consultation after announcing an inaccessible venue at the last minute, in what could only be described as a clear example of disability discrimination.

Given the DWP’s failures, any consultation must now be run independently by Welsh disabled people’s organisations.

Please read and sign here:

https://Bit.Ly/No-Vote-Without-Wales

No vote without Wales! #NoVoteWithoutWales

Kind regards,

[Name]

[Postcode]

[Phone number]

May 012025
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Write to your MP now to attend the Personal Independence Payment and disabled people debate in the House of Commons.

The debate is being held on 7th May between 2.30 to 4.30 pm in Westminster Hall, and was called by Diane Abbott MP.

You can use our template letter below.

Find your MP here.

 

Template letter

Dear [MP],

I am writing to you to ask you to attend the Personal Independence Payment and disabled people debate in the House of Commons on the 7th May at 2:30 pm. The proposed changes could have a devastating impact on disabled people without any consultation with us.

The upcoming cuts to Personal Independence Payment could result in 800,000 disabled people losing access to funds they need to meet their access requirements. Personal Independence Payments is a non-means tested benefit which provides disabled people the financial means to meet their disability-related expenses, including equipment, services and other essential forms of support. Personal Independence Payment is also a qualifying benefit for many other services, including blue badges and travel cards.

These changes are not being consulted on by the public, and disabled people’s organisations have publicly stated that they were inadequately consulted by the Government. Overall, this is an attempt to pass a proposal which could cause 800,000 people to lose access to vital support, that is part of a package of cuts which could push 350,000 people, including 50,000 children, into poverty without any proper scrutiny or input from the people it will affect.

We ask that you please attend this debate and raise our concerns that huge changes to PIP have been proposed without any consultation or engagement with the disabled people who will be affected.

Kind regards,
[Your Name]
[Your Address and/or Postcode]

 

Take part in a survey

This survey is to gather evidence on how disabled people use Personal Independence Payments (PIP) and how losing access to PIP may affect them.

https://www.surveymonkey.com/r/K8FMZLC

Dec 092014
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

John Healey (Wentworth and Dearne) (Lab): What legal costs his Department has incurred in legal proceedings involving disabled people relating to the under-occupancy penalty and the closure of the independent living fund. [906481]

The Minister for Disabled People (Mr Mark Harper): The Government have robustly defended their policies in relation to the closure of the independent living fund and the removal of the spare room subsidy. The total known legal costs to date, in respect of both policies where disability formed part of the grounds of the claim, are £415,000: £236,000 for the ILF and £178,000 for the removal of the spare room subsidy.

John Healey: That is a part answer to a very direct question about the cost to the taxpayers of Government lawyers defending the indefensible—axing the ILF and introducing the hated bedroom tax. Will the Minister not recognise that many severely disabled people flourish with the fund but are now frightened of losing their independence when he shuts it down next year? He might have won the legal case this year, but he has lost the moral and policy arguments, so even at this 11th hour will he rethink the protection available to ILF users?

Mr Harper: No, I will not. I have talked to disability organisations about this matter, and they agree with the Government. More than 1 million people get social care through the mainstream social care system. The Government are not making any savings by moving the ILF to local authorities and devolved Administrations, and we are working closely with each local authority to ensure that the amount of money being transferred at the point of closure next year will be exactly what is needed and what is being spent by the ILF, meaning that disabled people will be protected.

Barbara Keeley (Worsley and Eccles South) (Lab): Some £4.3 billion has been taken out of adult social care budgets over the past four years because of the Government’s cuts. If that funding transfers across, as is planned, it will plug only a very small part of the gap. If they will not rethink this policy, as my right hon. Friend the Member for Wentworth and Dearne (John Healey) just suggested, will Ministers require that the funding be ring-fenced to ensure that 70 people in Salford and 18,000 people across the country with disabilities can look forward to keeping their independence and to this continuing support?

Mr Harper: Of course local government has had to play its part in the savings, but local authorities can make choices. My local authority in Gloucestershire has protected the value of social care because it thinks that protecting older people—[Interruption.] No, my local authority has faced cuts, like all local authorities, but it has chosen to—[Interruption.] If Opposition Members want me to answer their hon. Friend’s question, they should stop yelling. My local authority has prioritised funding for older people and people of working age. Clearly, the hon. Lady’s local authority has made different decisions. If those on her local authority want to ring-fence the money transferred from the ILF, they are absolutely free to do so, so I suggest she take that up with them.


8 Dec 2014 : Column 632

We want to thank John Healey MP for raising these questions

But other questions arise: which disability organisations did Harper speak to and why did they agree with the Government that closing ILF was a good thing for disabled people with high support needs and their employees? Did Harper speak to ILF users?

Watch this space……

Dec 082014
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

This morning after weeks of anxious waiting, disabled people and our supporters learned that the high court has found against the latest legal challenge against the government’s decision to close the Independent Living Fund (1). Disabled campaigners vow to continue the fight in every way that we can.

 

The campaign to save the Independent Living Fund has been one of the most high profile among the many battles disabled people are currently fighting against current government policy that is detrimentally impacting on disabled people, with disabled activists occupying Westminster Abbey gardens over the summer (2).

 

In November last year the Court of Appeal quashed the government’s decision to close the ILF with the Court of Appeal judges unanimous in their view that the closure of the fund would have an ‘inevitable and considerable adverse effect which the closure of the fund will have, particularly on those who will as a consequence lose the ability to live independently” (3).

 

On 6th March this year the then Minister for Disabled People Mike Penning retook the decision and announced a new date of June 2015 for permanent closure of the Fund that provides essential support enabling disabled people with the highest support needs to live in the community when the alternative would be residential care (4).

 

In October a second legal challenge was heard in the high court brought by disabled claimants claiming that the Minister had not considered any new information to properly assess the practical effect of closure on the particular needs of ILF users (5). The Department for Work and Pensions mounted a defence based on their assertion that the Minister had adequate information to realise that the independent living of the majority of ILF users will be significantly impacted by the closure of the fund.

 

Tracey Lazard, CEO of Inclusion London said: “The closure of the ILF effectively signals the end of the right to independent living for disabled people in the UK. Whilst never perfect the ILF represents a model of support that has enabled thousands of disabled people to enjoy meaningfully lives and to contribute to society as equal citizens. Since the closure of the Fund to new applicants in December 2010 we have seen disabled people left with their most basic needs unmet and unable to seek employment, to volunteer or go into education or simply even to leave the house.”

Linda Burnip, co-founder of the campaign Disabled people Against Cuts, said: “Regardless of this ruling, disabled people will not be pushed back into the margins of society, we will not go back into the institutions, our place is in the community alongside our family and friends and neighbours and we are fighting to stay”.

 

For more information or to speak to disabled people directly affected by the Independent Living Fund please contact Ellen on 07505144371 or email mail@dpac.uk.net.

 

Notes for editors

1)      For full judgement and press release from solicitors working on the case see: https://www.deightonpierceglynn.co.uk/https://www.scomo.com/

2)      https://www.theguardian.com/society/2014/jun/28/occupy-westminster-disabled-people-against-cuts

3)      https://dpac.uk.net/wp-content/uploads/2013/11/522372-ILF-Briefing-Note-06-11-2013.pdf?bb10e9

4)      https://www.gov.uk/government/news/future-of-the-independent-living-fund

5)      https://dpac.uk.net/2014/06/breaking-news-2nd-court-case-to-challenge-ilf-closure-launched/

 

Aug 152014
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

 

The campaign to save the Independent living Fund (ILF) is now at its most crucial stage, because it involves you.

 

Following the high profile Westminster Abbey sit-in and the tea parties held outside DWP offices, we’re now asking ILF recipients to invite MPs to their homes to show them exactly what the ILF means in reality and why it must be kept.

 

This Summer is a great time to lobby MPs as they’ll be back in their constituencies working hard in the hope of securing votes in the run up to the 2015 General Election.

 

Please take the simple steps in this toolkit and let us know how it goes so we can target politicians and do everything we can together to save the ILF.

 

It includes writing a letter/email to your MP, writing to the local paper, meeting your MP, arguments and briefing and an invitation for your MP to the MP Drop in on 2nd September

 

Independent Living fund Drop in

with BBC Silent Witness actress Liz Carr

2 September 2014; 2 – 4pm; House of Commons Committee Room 19

This drop in session will be a chance for MPs to find out more about the closure of the ILF which currently supports nearly 18,000 disabled people with the highest support needs to live independently in the community, to contribute to society in employment, education, volunteering, as family members, friends and as members of our communities and to build the local economy through employing teams of Personal Assistants.

 

The surgery will be an opportunity to ask questions and to speak to Liz who has been enabled, through support from the ILF, to progress an acting career that has spanned stand-up comedy, presenting for BBC and primetime television.

 

Also in attendance to answer your questions will be a former ILF staff representative and a disabled person who missed out on the ILF through its closure to new applicants in 2010 and whose experiences reflect those of many other disabled people now excluded from participating in areas of life that non-disabled people take for granted.

 

The Drop in is being organized by PCS Union, Disabled People Against Cuts and Inclusion London.

 

For more information contact ellen.clifford@inclusionlondon.co.uk or Natasha@pcs.org.uk

 

Click Save-the-ILF-mobilisation to download the full Save ILF Mobilisation Word document

 

 

 

Jun 192014
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

The ILF has transformed People’s lives.  The Independent Living Fund does what it says on the tin – it liberates people who wouldn’t otherwise be able to, to live independently.  It lets them make choices about how they live – things we often take for granted: when to get up or go to bed, what and when to eat.  It allows them to work, to be active in the community and to live in their own homes.

 

I challenge the Minister today to guarantee that those currently in receipt of ILF won’t become less independent as a result of his decision to close it in June 2015. Because that’s what people fear.  That’s what they are frightened of.  They fear losing their jobs, losing those staff they employ to support them and losing their independence.  They fear being forced out of their homes and into institutions.

 

The Minister may say he’s passing the monies and responsibility to Local Authorities but this will not ease their fear.  And he is rather naïve if he thinks that absolves him from his responsibilities for this decision.  I’m afraid he can’t get away with devolving responsibility and blame for the consequences of his decision to others.  That’s why I ask him for these guarantees today.  For a start Disabled People Against Cuts calculate the current annual cost of support at around £288 million yet the government only identified £262 million to transfer to local authorities.   And it gives no reassurances that this money will be ring fenced to be spent only on supporting disabled people to live independently rather than absorbed into broader council budgets.

 

According to SCOPE £2.68 billion has been cut from adult social care budgets in the last 3 years alone, equating to 20 per cent of net spending.  This is happening at a time when the numbers of working-age disabled people needing care is projected to rise by 9.2% from 2010 to 2020.  In a recent survey 40% of disabled people reported that social care services already fail to meet their basic needs like washing, dressing or getting out of the house.  And 47% of respondents said that the services they receive do not enable them to take part in community life.

 

So it’s not surprising that people are desperately worried about their future.

The worry is that continued underfunding of social care will mean the care system will simply not be able to support disabled people to live independently.  The lack of reference to ‘independent living’ under the definition of the ‘well-being principle’ in the Care Bill which local authorities will need to take into account when providing care further fuels this anxiety.

 

And it’s not just people in receipt of ILF who are worried – it’s their friends, their carers and their families too.  The cases of two of my constituents illustrate this well.

 

 

Ashley Harrison is a Scunthorpe United fan like me cheering on the Iron at Glanford Park. At 10 months old he was diagnosed with cerebral palsy.  He will turn 30 this year.  Ashley has lived in his own bungalow since 2006.  The ILF allows him to employ his own team of carers.  Ashley is an inspirational man, a fighter but he is worried that the control over his future is being taken away from him.

 

His mother says:

 

‘The closure of the ILF would be nothing less than devastating for us as a family. Since Ashley was awarded his ILF allowance the whole family’s lives have changed for the better. ILF understands Ashley’s needs and always do everything they can to constantly improve Ashley’s life and enable him to live independently.

As a family naturally all we have ever wanted is the best for Ashley, which the ILF has helped us achieve. The ILF has always seemed to be the leading and positive force at meetings ensuring that social services match and meet Ashley’s needs. Without the ILF we all face a very uncertain future. The uncertainty that Ashley faced in his early years prior to receiving his ILF award have been daunting, frustrating and of course a constant battle with social services.

The alleged “smooth transfer” over to social services is already proving to be nothing of the sort.  Each and every meeting we hold (which are incredibly frequent) leave us having to justify Ashley’s needs as a disabled person.  The assessments they ask us to complete are totally unsuitable for the severely disabled.

All of the disabled people living independently with the help of ILF are living their lives to the full. The fear is that if ILF closes these people will lose their human rights and dignity to live their lives as they should.

As a mother who’s fought the last 30 years for Ashley to have the life he wants and of course deserves, I dread to think what the next generation of disabled people will have to endure without the positive support of the ILF.

I beg you to listen to myself as a mother of a disabled son and also listen to all those disabled voices who deserve to be heard.

Give each and every person the ability to live and achieve their dreams just as you and I can.

The Paralympics just proves how amazing disabled people can be!!!’

 

 

Jon Clayton is also in receipt of ILF.  Like Ashley he has carers whom he employs who understand his disability.  His sister writes

 

‘My brother Jon is quadriplegic having been involved in an accident which was not his fault at the age of 18. He is now 54. 

He is one of life’s truly inspirational people; an accomplished mouth artist – a gift he only knew he had after his life changing accident-  living independently in his own home. He freely gives his time mentoring other disabled persons, helping them come to terms with another life. A life without limbs. A life without walking.


He has always sought to live as normal a life as possible. Having gone through marriage, divorce, being a step father, losing a partner.

He is both ordinary and extraordinary.

He relies heavily on his full time carers. Carers who he personally has ensured are trained to an appropriate and exceptional level to look after a person with specific and defined needs. One false move and he could (and has) spent 18 months bed bound with a pressure sore at the expense of some ill trained nurse.


His carers are trusted to ensure and give a high level of care, entrusted with the most personal of tasks from catheter changing, toileting, dressing etc.  This has been part of Jon’s life since his accident. Something he has taken on with humour and dignity.

If the ILF is removed Jon will be unable to live independently. Being able to engage in what you and I would consider a normal life. He will be unable to travel, have holidays, visit family, visit friends. 

The ILF has enabled independence. Given life, where life seemed over.

I would therefore urge you to do all you can to prevent this life enabling function – the ILF – from being eroded’

 

A fundamental concern for Jon, Ashley and others is whether they will be able to employ their specialist staff in the future.  North Lincolnshire Council’s responded to this question on 9th June 2014:

 

‘We appreciate this situation may cause you concern as an existing Independent Living Fund customer and would wish to reduce any worry or anxiety you may have.

 

Allocation of future monies will be based on your updated assessment and support plan and on future Local Authority funding so at this stage we cannot give any specific guidance on the amount of monies that you may receive from us or cannot give guarantees on the future employment status of any Personal Assistants you may currently employ.’

 

As you can imagine such ‘reassurance’ only serves to heighten anxieties and build mistrust!

 

So I return to my central question – will the government guarantee that Ashley Jon and all those currently in receipt of ILF will not lose their independence as a result of their decision to close it.  A decision I believe is aimed at saving money but might end up costing more in other budget areas such as health.  A better way forward would be for government to engage with ILF recipients learn from their experience and find ways of shaping future services that are cost effective but continue to deliver true independence.

 

As Disabled People Against Cuts points out for the 17,500 people in receipt of ILF ‘the closure of the Fund will have a devastating impact on the lives on these individuals and their families.  It also has a much wider significance because at the heart of this is the fundamental question of disabled people’s place in society: do we want a society that keeps its disabled citizens out of sight, prisoners in their own homes or locked away in institutions, surviving not living or do we want a society that enables disabled people to participate, contribute and enjoy the opportunities, choice and control that non-disabled people take for granted?’

Or in Mahatma Ghandi’s words “A nation’s greatness is measured by how it treats its weakest members.”

 

People like Jon and Ashley are not weak but strong.  The ILF gives them independence and liberates their strengths. Now is the opportunity for the Minister to guarantee their future independence will not be compromised by the closure of the ILF.

 

https://www.nicdakin.com/ilfspeech.html

 

DPAC would like to thank Nic and all the supportive MPs at the adjournment debate on ILF on 18th June 2014

 

See the ILF debate at: https://www.bbc.co.uk/democracylive/house-of-commons-27884690

 

 

Jun 132014
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Get your MP to the House of Commons Debate!

Wednesday 18th June 11am

The future of the Independent Living Fund will be debated in the House of Commons for the first time this Wednesday 18th June from 11 – 11.30am.

We need to make sure as many MPs know it’s happening and will be there prepared to stand up for the ILF and the future of independent living support for disabled people.

The fight for the ILF is far from over.

Where will your MP be during the ILF Debate?

In March the Minister for Disabled People announced a new decision to permanently close the ILF in June 2015 following a ruling by the Court of Appeal in November 2013 which quashed the Government’s previous decision to close.
Last week ILF recipients launched a fresh legal challenge which you can read about here

Meanwhile #SaveILF supporters have been busy contacting their local councillors and MPs collecting sign ups to the campaign statement and spreading the word with the brilliant ILF postcard campaign: www.facebook.com/ILFpostcard

One supportive MP Nic Dakin MP for Scunthorpe has managed to get a debate on the future of the Independent Living Fund for this Wednesday 18th June 11 – 11.30am.

Whilst it is only half an hour, it is the first time the ILF and the fundamental question of the removal of disabled people’s right to independent living which its closure represents, has had a debate in Parliament.

This is an opportunity to make sure politicians know what the ILF is and why it is so important.

We need to take urgent action to write to our MPs, urging them to attend the debate, telling them why it matters and most importantly sharing your stories and experiences that show why we need not only to keep the ILF open but to reopen it to new applicants.

You can find your MPs email address and post address here.

Here is a briefing about the ILF you can download and send them as an attachment. ILF briefing 13 June 2014  (just click on the link)

If they can do it in Scotland, why not here?


 Posted by at 16:15
May 082014
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Dear Sir,
I received the attached leaflet yesterday and my wife a similar (smaller) one today, both unsolicited. We demand an explanation as to where and from whom you obtained our personal data as I believe that you have mis-used it and may even have obtained it unfairly or unlawfully.

We require this within fourteen days or I shall make a formal complaint to the Information Commissioner’s Office. I shall do so in any event, should said explanation not be satisfactory. Furthermore, we require you cease any processing and to delete our personal information – however obtained – and never contact us again.

In any case, given that I regard the Conservative Party as only minimally above the British National and UK Independence Parties in the food chain of malignant bigotry, I find the leaflet to be offensive as well a tissue of lies and misrepresentation.

For example:

• You claim to have created or promise to create ‘a stronger economy at home’. For whom exactly? The much-trumpeted job creation schemes have been proven to be riddled with fraud and incompetence – by government and providers – and to have created fewer than 30,000 jobs – most of them of the lowest paid class? You appear bent on creating, effectively, a slave economy in all but name.

• You claim to have created or promise to create ‘renewed respect abroad’? Almost certainly only from governments such as the United States to which you are proven sycophants (see e.g. the reaction to Edward Snowden’s revelations, Russia, Ukraine, et al). The previous administration’s tenure in regard to the so-called ‘special relationship’ can be summed up, somewhat crudely as Bend Over For Bush, but the Conservatives have turned that into a fine art.

• You claim to have wrought or want ‘real change in Europe’. How exactly? You scream like stuck pigs every time a decision or negotiation goes against you and have no apparent clue as to the founding ethos behind the European Union, or European Coal & Steel Community as it originally was. Remind me, who took us into Europe? Might it have been a Conservative government?

• ‘Cut the deficit by a third’? Really? Apparently only by (1) increasing concessions to those who contribute least to the Exchequer (i.e. bankers and tax-dodging businesses) as well as a malignant and persistent attack on justice – overseen by a Minister who knows nothing of the justice system and couldn’t care less. Your party – by way of its odious coalition with the Liberal Democrats – have made access to justice little more than a sick joke. (2) By attacking the most vulnerable in society, among which I count myself.

• ‘Create more jobs’? See above.

• ‘Cut tax’? Again, for whom? Principally for those who do everything they can to avoid paying it at all, presumably.

• ‘Control immigration’? How? Your history – particularly recent history – would suggest that you intend to achieve this by racist attacks, particularly in the press and via equally racist and unlawful publicity as well as racist stop-and-search campaigns instigated by a Minister forced to resign when it was revealed that he himself employed an illegal immigrant!

• ‘Cut the costs of Europe’? The greatest savings could arguably be made by the government/party complying with their legal obligations and not fighting every decision simply because it doesn’t serve Conservative rather than British or European interests. Furthermore, your projected savings in this regard of £8.15bn are also misleading, perhaps fraudulent, given that the Chancellor changed the tax regime for the largest corporations – at a projected cost to the exchequer of between £5bn and £10bn a year over the next six years. The Institute for Public Policy Research also showed that a tax on financial transactions of a mere 0.01% would raise at least £25bn a year. Perhaps that was ignored because that would impact party funding by losing you the support of such people?

Perhaps you could also explain why the British Government has thus far failed or refused to ratify the recent European convention on violence against women.

• ‘Defend Britain’s interests’? See earlier comment on the founding ethos of the EU and then read some recent European history!

• ‘Keeping our border controls and cracking down on benefit tourism’. To use an American expression: What a crock! This is pure saloon bar politics, as are previous claims by the Conservatives with regard to so-called ‘health service tourism’ which has been proven to benefit, rather than detract from the national and local economies. Your claims regarding ‘benefit tourism’ are also equally misleading and fraudulent given that several bodies have found UK benefits to be manifestly inadequate in any case.

• ‘Securing more trade but not an ‘ever closer union’ ‘. Fraudulent twaddle, given that the two will ultimately be mutually exclusive where European trade is concerned.

• ‘Getting a better deal for British Taxpayers’. Which taxpayers exactly? Perhaps you might explain why, for example, Rinat Akhmetov pays less Council Tax on two flats in Hyde Park purchased for £136.4m than does the owner of a house in Blackburn, Lancashire valued at £115,939 – on which they probably have a mortgage? By the way, Rinat Akhmetov is an immigrant, but I have yet to read any racist Conservative rhetoric directed against him and his ilk.

Perhaps you might also explain why, while poor people are being forced out of their homes due to government cuts, the government is increasing the subsidy it provides for grouse moors (owned by roughly 1% of the so-called 1%) from £30 per hectare to £56?

• ‘Capping welfare and reducing immigration’? It is typical of the Conservatives to conflate two classes of people in this regard that they continue to denigrate as ‘scroungers’ – both by implication (by repeatedly and fraudulently referring to ‘hard-working people’) and directly. Since the very second it entered office the coalition has mounted a malignant, vicious and discriminatory war on the sick and disabled to the extent that it is directly responsible for hundreds of deaths – led by a Minister who is not only manifestly incompetent, but (repeatedly) a proven liar and failed party leader. Your politician’s continued and blatant lying pronouncements with regard to food banks are also about as despicable as it comes. You might also explain – with regard to the disabled (of whom I am one) – why, despite funding for ‘Access for All’ having been cut by roughly half (or eliminated), the government appears to be allocating what spending there is for rail improvements to predominantly coalition areas?

You might also explain something else: Despite introducing a completely vindictive benefit cap (£26,000) – the rationale for which is, short of the Conservative brand of malignant bigotry – completely evidence-free. The government instigated this while fighting desperately in Europe against a proposed cap of ten times that on the subsidies which agriculture can legally claim. The largest 170-odd landowners in Britain now collectively claim £120m. Who was profligate with the budget there Mr. Mabbutt? It was the coalition – predominantly made up of Conservatives – who fought that cap. Might that be because a significant number of your members are landowners?

The party and government’s pronouncements on immigration are also fraudulent and discriminatory given that a significant proportion of immigrants start businesses which go on to actually employ people! This is a claim that cannot truthfully be made of most government schemes during the current or previous Conservative governments. The Conservatives also either gloss over the contributions that immigrants have made to this country – Sir Alec Issigonis as one example, Dame Doreen Lawrence for another – or ignore them altogether, airbrushing them out of British history.

• ‘Delivering the best schools and skills for young people’. Utter rubbish! Education funding is more under attack now than it ever has been, with overworked teachers, fewer or non-existent resources and attacks on wages and conditions for all staff, let alone teachers. Standards are falling under a clueless Minister and a government interested in political advantage rather than meaningful change. My own granddaughter was also the victim of this fraud. She was following a so-called ‘apprenticeship’ on slave wages of £2.10 per hour and, just prior to the projected end of this modern-day slavery, was the victim of a trumped-up disciplinary offence and dismissed despite having out-performed even most of her supervisors. Thanks to government ‘reforms’ she cannot afford to seek redress through an Employment Tribunal. She also has significant talents in signing for hearing impaired people but cannot obtain employment in that field as she cannot afford to attend university to obtain the requisite qualifications.

Higher education has become increasingly elitist – giving the further lie to your claims regarding education. I was fortunate enough, when I became disabled, to be able to attend university as a mature student (1995-1999 and 2005-2008) via grants, student loans and Disabled Student Awards in an effort to make myself employable. I sincerely doubt that would be possible today – particularly given the cuts to support for disabled students.

This was, however, ultimately futile (other than the education itself) as I went into teaching in Further Education and – thanks to changes wrought in this area by the previous Conservative government(s) – was forced to work via an agency at £5-6 per hour less than my full-time, directly-employed, colleagues. Ultimately, my teaching hours were almost the equivalent of three full-time posts. Consequently I became seriously ill as a result and will almost certainly never work again.

You now class myself and people like me as scroungers to be hounded by your creatures Atos and their ilk, driven even further into poverty and ultimately an early grave.

Thanks Tories!

Yours, etc.

John Lockett

CC:
Retained.

Information Commissioner’s Office.

Data Controller, Conservative Party.

Disabled People Against Cuts.

DPAC says: we were going to add a picture of the leaflet, but decided to spare everyone

 

Apr 252014
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Please save the independent living fund!

I got up this morning, brushed my teeth, showered, ate breakfast, got dressed, checked my e mails, went to work, had lunch with colleagues, met with friends on the way home from work, popped in on my mum to see she was alright before coming home to do a couple of hours work on my open university degree before bed. I was able to do all this because of the money from the Independent Living Fund that helps pay my Personal Assistant to support me to do the things I can’t manage to do directly because I have a condition that means my hands do not work and I get around using a wheelchair” – ILF recipient.

The money from the independent living fund helps pay for a personal assistant, and enables disabled people who need support to have a quality of life to do the same things everyone else can do. Live.

The government says “ILF recipients will be reassessed by their local authority, and will be funded by the local authority” The money given to the local authority to meet a disabled person’s support needs will not be ring fenced. The local authority can spend that money meant for disabled people and their support needs on other resources. Disabled people who need the support fear less or no support at all and then being placed into residential care, far from friends and family.

Imagine this; your local authority has cut your support needs. You would have to rely on the local pop in service from carers you do not know, to keep you clean, warm up a meal in the microwave, and convenient at the time for the carer but not a convenient time for you. If you need night care, you would then be forced to wear incontinence pads or even worse cathertised.

You would then be only able to shower once a week, have no social life, have to perhaps use a hoist and then excluded from every day activities outside, forced to give up your pet if you had one, no garden, forced into isolation, having to sack the personal assistant you relied on for many years with no redundancy for them.

Now you are thinking you do not want to go on anymore. Its how do I go on like this with little support? Due to the lack of support you are now isolated at home cut off from society and from friends and family and as the lack of support means no independence, no social life, can’t work, no quality of life, it would make anyone feel down, and even depressed. It’s awful to contemplate isn’t it?

Disabled people want rights. Rights to live independently in the community, to have our support needs met, so we can have a quality of life, and do the same things as everyone else does. Live.

Society forgets that we are human beings, people, we are mothers, fathers, brothers, sisters, friends, neighbours, colleagues, but society sees the impairment, not the person we happen to be. We are judged, discriminated against, and called a drain to society. Well, we are not!

People can be born with an impairment, or at some point in their lives can even be struck down with a devastating illness, hit by a car, lose your mobility need to use a wheelchair to get around, have a breakdown, could lose your job and need to claim benefits to live. The social security system was put in place to protect those who needed the support, who may be too ill to work. You need the support every day to carry out the simplest of tasks. Life is unexpected, it’s cruel and its tough, it can change in a flicker of an eye lash, and it can happen to YOU.

Life is really hard living as a disabled person every day. Trying to manage life with all the same worries as non disabled people. Money, keeping a job, family life, health issues, how to get around using public transport. It’s bloody tough.

The independent living fund gave people with severe impairments the support needed to live life as we chose, so we could work, go shopping, feel part of society, a human being. A non disabled person is not used to thinking about how they would go to the toilet, get in and out of their home, get to work but we need to plan all those things in advance and ensure we have the support to do them.” -ILF recipient.

Our demand is to keep the independent living fund open, open it up to new claimants and open up independent living to all disabled people so we can keep our independence, and with support, have a quality of life and live.

All I ask of you is for your help. Help us save the independent living fund from closing on 30th June 2015. As disabled people, we want rights to live independently as possible, having a quality of life despite what we battle with every day with our disabilities and illnesses.

Why? Because we’re worth it! We are human beings and we want to be treated as such, not the stock the government and great swathes of society think we are. We are worth it! Help us keep the independent living fund open and help us in the fight for our rights so we can have a quality of life living in society as best as we can.

by Paula Peters

Take part in the Save the ILF Campaign:




An Important Request on ILF from Mary Laver https://shar.es/BjyqK #SaveILF #ILF




What the Closure of the #ILF means to disabled people -Mary’s story https://campaigndpac.wordpress.com/2013/03/07/what-the-closure-of-the-independent-living-fund-means-to-disabled-people-mars-story-2/ #SaveILF #ILF




What the Closure of the #ILF means to disabled people – Justine’s story https://campaigndpac.wordpress.com/2013/03/07/what-the-closure-of-the-independent-living-fund-means-to-disabled-people-justines-story/ #SaveILF #ILF




What the Closure of the #ILF means to disabled people – John, Paul and Evonne’s story https://campaigndpac.wordpress.com/2013/03/07/what-the-closure-of-the-independent-living-fund-means-to-disabled-people-john-paul-and-evonnes-story/ #SaveILF #ILF




What the Closure of the #ILF means to disabled people – Roxy’s story https://campaigndpac.wordpress.com/2013/03/07/what-the-closure-of-the-independent-living-fund-means-to-disabled-people-oxys-story/ #SaveILF #ILF




What the Closure of the #ILF means to disabled people – Kathy’s story https://campaigndpac.wordpress.com/2013/03/07/what-the-closure-of-the-independent-living-fund-means-to-disabled-people-kathys-story/ #SaveILF #ILF




What the Closure of ILF means to disabled people – Richard’s story https://www.dpac.uk.net/2013/03/what-the-closure-of-ilf-means-to-me-richards-story/ #SaveILF #ILF




What the Closure of ILF means to disabled people – Penny’s story https://www.dpac.uk.net/2013/03/what-the-closure-of-ilf-means-to-me-pennys-story/ #SaveILF #ILF




What the Closure of ILF means to disabled people – Anthony and David’s story https://www.dpac.uk.net/2013/03/what-the-closure-of-ilf-means-to-disabled-people-anthony-and-davids-story/ #SaveILF #ILF




What the Closure of ILF means to disabled people – Kevin’s story https://www.dpac.uk.net/2013/03/what-the-closure-of-ilf-means-to-disabled-people-kevins-story/ #SaveILF #ILF




Second Closure of #ILF and our analysis of the equality analysis by DWP https://shar.es/Bm4hM #SaveILF #ILF




DPAC statement on government announcement on closure of the #ILF https://shar.es/BHRcl #SaveILF #ILF




How the closure of the ILF will affect lives https://dpac.uk.net/independent-living-fund/#sthash.dLgkwYIe.dpbs #SaveILF #ILF




What Local Authorities said about the Closure of ILF https://www.dpac.uk.net/2013/02/what-local-authorities-said-about-the-closure-of-ilf/ #SaveILF #ILF




A Nasty Cut people affected by the closure of the #ILF https://www.dpac.uk.net/2013/02/a-nasty-cut-people-affected-by-the-closure-of-the-independent-l5142/ #SaveILF #ILF




Second Closure of Independent Living Fund and our analysis of the equality analysis by DWP https://shar.es/BjygQ #SaveILF #ILF


There are many more tweets that you can use here: https://dftr.org.uk/SaveILF

The “Save The Independent Living Fund” postcard campaign is supported by GMCDP, ALLFIE, DPAC, Inclusion London and Equal Lives.

 

 

 Posted by at 16:13
Feb 162014
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

The WOW petition debate which has been supported by John McDonnell MP will take place on Thursday 27th February 2014 around 11.30 am at the House of Commons chamber.

Please contact your MP to ask them to attend this important debate. You can find your MP’s email details at www.parliament.uk

You may want to remind your MP that as we are approaching an election in the not too distant future you will be monitoring to see whether they attend or not on your behalf.

Template letter mainly taken from WOW

https://wowpetition.blogspot.co.uk/2013/12/draft-letter-to-mps-option-2.html

Dear …..

I am writing as your constituent to ask you to represent my views in Parliament.

I support a government e-petition, the WOW petition, which passed the 100,000 signature mark, and on the 10th December 2013 and was granted a full chamber debate by the Back Bench Business Committee in the New Year. This in itself is a historic event as it is the first time in the history of this country that disabled people have secured a Main Chamber debate.

The petition calls for a cumulative impact assessment of welfare reform as it affects disabled people and those with a long term health condition as well as family carers, and an end to the Work Capability Assessment, as demanded by the British Medical Association.

==================

Please add a personal message here to illustrate how this Government’s Policies are either directly affecting you, your family, people you know or society and why you believe the Government should properly debate their policies, the effect they are having and the hardship they are causing to specifically targeted groups with UK society. 

==================

I know you are very busy, but please allow me to present some evidence to support the need for these measures.

The Welfare Reform Act  was promoted as the biggest shake up in welfare for 60 years, so it was extraordinary that no assessment was carried out on how it would affect disabled people. I believe the government now needs to take stock, and face the fact that disabled people have been caused great distress and hardship by measure such as the Work Capability Assessment, bedroom tax, the twenty per cent cut in the budget for Disability Living Allowance, the closure of the Independent Living Fund to new applicants, and many more measures. The think tank Demos has calculated that disabled people, already more likely to be living in poverty, will lose around £28 billion over five years. This hardly seems to be sharing the burden of austerity fairly.

As for the Work Capability Assessments, these have been a disaster. The British Medical Association last year called for them to be scrapped with immediate effect. Parkinson’s UK’s research found that almost half of people with a progressive illness, when assessed, are told they will get better and placed in the Work Related Activity Group. This means they are required to prepare for work, and if they are unable to do what is required of them can be sanctioned leaving them with no income. Please remember these are people with Parkinsons Disease and other progressive illnesses.

As my representative in Parliament I am requesting that you attend and speak at this debate so that your constituents and I can understand your views on government policy towards disabled people.

I would also like to add that we are quickly approaching national elections and I and your other disabled constituents will be watching how you are willing to support us very closely.

Yours sincerely,

 Posted by at 21:23
Jan 212014
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Personal Independence Payment (PIP) is the new benefit which replaces Disability Living Allowance (DLA). 

DLA was introduced in the UK in 1992, and its main purpose was to compensate for the extra costs associated with disability and it was therefore not means tested, non contributory and not taxable. Although the majority of people claiming DLA had mobility issues, some disabled people would also choose to claim it to cover their personal care costs. Many were awarded DLA for life in recognition that their impairment/health issue would be with them for life. DLA was for those both in and out of work for the extra costs associated with disability. The Government presented PIP as a ‘like for like’ payment to replace DLA.

PIP was introduced in 2012 to replace DLA, the government arguing that the increasing number of claimants made DLA unsustainable.  PIP is therefore more restrictive and will lead not only to a reduced number of claimants but also to a reduced number of claimants entitled to the enhanced rate of the mobility component. https://disabilitynewsservice.com/2014/01/shocking-pip-figure-raises-new-motability-concerns/

PIP has also been riddled in controversy because of Atos, the firm contracted by the government to undertake the PIP and the Work Capability Assessments, which has led to 1 million disabled people appealing in court, with 43% of them succeeding in having their fit for work decision overturned. https://dpac.uk.net/2012/11/esa-appeals-increase-by-40-what-the-newspapers-wont-print/

Therefore it really came as a surprise to discover that in 2012 PIP had become a sanctionable benefit.

https://www.whatdotheyknow.com/request/192913/response/472770/attach/3/8.194%20Clarification%20letter%20Jones%20WDTK..pdf

https://legislation.data.gov.uk/ukpga/2012/5/schedule/9/crossheading/social-security-fraud-act-2001-c-11/data.htm?wrap=true

However aborrhent sanctions are, there is a kind of twisted logic behind them.  JSA and ESA claimants have to sign a contract (under duress, meaning threat of sanctions) and have to comply with the terms of this ‘contract’ (again under threat of sanctions). If they don’t, they will lose some of their benefits and many JSA and ESA claimants have been sanctioned, some 120 disabled people up to three years https://www.cpag.org.uk/content/3-year-benefit-ban-hits-120-disabled-people-under-new-sanctions-regime

 But with PIP, there is no contract, no Jobseeker’s agreement, no Claimant Commitment and it still remains a recognition that life for disabled people is more expensive, if they have to buy appliances or care that non disabled people don’t need in order to live a decent and dignified life or to work.

So what does it take to have your PIP sanctioned?  Is there somebody in the twittersphere or reading this article who can answer this question?  Because making PIP sanctionable does not make any sense, unless the DWP or IDS have a cunning plan. And they might.

Jan 072014
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Independent Living & The Care Bill 2013 – help make this Bill better for disabled people 

The Care Bill going through Parliament this January 2014 will shape social care for years to come yet the Bill currently does not include any mention of independent living and fails to address key concerns like independent advocacy and funding of social care. 

The Care Bill is being discussed by MPs from 9 January till early February, during this time changes can be made to the Bill to improve it. We know you are extremely busy but please take the time to get in contact with your MP to ask them put forward amendments to the Care Bill to ensure independent living is at the heart of this important piece of legislation and also encourage your service users and members to contact their MPs as well.

We have received some great news – Liz Kendall, the Shadow Care Minister has put forward important changes to the Bill suggested by Inclusion London and supported by DPAC regarding choice and independent living, for discussion by the Care Bill’s Scrutiny Committee! Pressure from your MP now will help these amendments to be accepted in the House of Commons.

Detailed below is all the information you need to lobby your MP. It won’t take that long and your input could make all the difference.

How to lobby your MP

  1. 1.   Email or write to your MP. 

Find out who is your local MP at: https://findyourmp.parliament.uk/

Their contact details are available at: https://www.parliament.uk/mps-lords-and-offices/mps/

Send the attached letter to your MP, feel free to change the letter to reflect your / their circumstances.

  1. Tweet:
    Service users / members can tweet about any responses to their letters or meetings, which will keep interest in the Care Bill alive. Use your own twitter account or email your tweet to henrietta.doyle@inclusionlondon.co.uk who will tweet it for you.
  1. Attend your MP’s surgery or ask for a home visit.
    Information about your MP’s surgeries times and venues is available at:https://wiki.openrightsgroup.org/wiki/London_MP_Surgeries

Home visits:  If you are not able to attend your MP’s surgery because of your impairment you should ask for a home visit.

  1. DDPOs you can organise a meeting between your MP and your members and users about the Care Bill.

For information on how to contact your MP go to: https://www.parliament.uk/mps-lords-and-offices/mps/ 

We know you are extremely busy but please take the time to get in touch with your MP. This is a vitally important piece of legislation that will have a huge impact on disabled people’s lives now and in the future. We can make this Bill better.

Many thanks to Inclusion London for putting together this campaign pack for people to use. Further information on the Care Bill is available to read at   https://www.inclusionlondon.co.uk/ 

Template Letter for individuals

 

Dear   Add the name of your MP,

I am writing to you regarding the Care Bill which is in currently being discussed by MPs.

The Care Bill has been described as a once in a life time opportunity to tackle the social care crisis which is impacting on my life. I am asking for your support to propose the amendments to the Care Bill below, to ensure that I am given the support I need for my independent living. 

Independent living for disabled people

As a disabled person I have the right to the same opportunities, choices and rights as other citizens. I want to get a job, build a career and have an education and to take part in community and public life.  I wish to decide when I go bed, what I eat and to live in my home with people I choose to live with, I also want to be able to leave my home to go out and about – go shopping, go to see a band. I would like the opportunity to be a parent and friend, have a family and social life. All these elements are included in independent living for disabled people.  Independent living is being able to contribute, participate and be included.

Funding

Social care is in crisis resulting in more and more disabled people going without the essential support they need. This situation is likely to continue because the Care Bill does not tackle the fundamental issue of funding for social care. I have not got large savings and do not own my house, so I will not benefit from the Government’s funding reforms.  I would like care and support to be funded so it supports me to lead an independent life of participation, inclusion, dignity and equality. To achieve this I believe it should be funded out of National Insurance contributions/general taxation and free at the point of need like the NHS, this would ensure I get the care I need for independent living in the future.

Amendments to Care Bill

I would be grateful if you could put forward the amendments below to the Scrutiny Committee or to the House of Commons when the Bill reaches Report stage, to try and ensure that independent living for disabled people becomes a reality. All the amendments are highlighted in bold:

1. Amendment to: Clause 1 ‘Promoting individual well-being’ 

Can you please propose the following amendments to the definition of ‘well-being’ and to the General responsibilities of local authorities:

1 Promoting individual well-being and independent living

(1) The general duty of a local authority, in exercising a function under this Part in the case of an individual, is to promote that individual’s well-being, independence and inclusion as equal and valued citizens and members of the community.

(a) That duties under independent living promote the wider definition of independent living as expressed in the UN Convention of the Rights of Persons with Disabilities.

(See Inclusion London’ paper attached for all the amendments to this clause). 

2. Advocacy

It is very important that disabled people are provided with independent advocacy right through the process of obtaining and maintaining care and support.

It is important because independent advocacy enables disabled people to participate in the assessment and review process but also enable disabled people to give direct feedback about the quality of services, which will help prevent on-going abuse of disabled people in the future. Therefore we ask you to put forward the following amendments to three clauses, (see wording in bold)

Clause 5.Promoting diversity and quality in provision of service:

A local authority must have regard to —

(c)      the need to offer and provide an independent advocate to enable service user feedback to improve the quality of services  

Clause 9.  Assessment of adults need for care and support:

A local authority, in carrying out a needs assessment, has

(d)     A duty to offer and provide an independent advocate to the adult to enable full participation in all needs assessments and reviews

Clause 42.   Enquiry by local authority:

(2)The local authority must-

(a)     Offer and provide an independent advocate to an adult who is experiencing, or at risk of, abuse or neglect to enable them to give evidence and participate fully in the enquiry. 

3. Amendment to Clause 9 ‘Assessment of an adult’s needs for care and support’

The assessment is the key gateway to care and support so it is important that disabled people, who are expert in their own needs, should be at the core of the assessment process. Can you please propose the following that:

  • All care assessments reflect the rights to independent living and choice encompassed in the UNCRDP.  Also that all care and support assessments should be a person centred process. 

4. Amendment to Clause 13 ‘The eligibility criteria’

The government has announced that the national eligibility threshold is to be set at ‘Substantial’. This means support will only be provided at a very late stage when disabled people’s health, wellbeing and independence has deteriorated badly. Can you please propose an amendment so that:

  • The eligibility threshold for care is set at ‘moderate’ to ensure that disabled people are able to receive the support needed to maintain and sustain health, wellbeing and independence

5. Independent Living Fund (no existing clause)

The impact on the independent living of disabled people with high support needs if the Independent Living Fund (ILF) closes in 2015 will be devastating. I would be grateful if you can propose a new clause to ensure there is:

  • A duty on local authorities to provide equivalent support as provided by the ILF that ensures independent living in the community on an on-going basis. 
  • Set up an Independent living task force, co-produced with ILF users, to review independent living and specifically the Independent Living Fund in order to identify how best to improve, develop and extend independent living support building on the successful model of ILF provision. 

5. Amendment to ‘Continuity of care and support when an adult moves’ – Clause 37 ‘Notification, assessment etc

I believe I should have the same freedom to move home as non-disabled people i.e. without the fear that my care package will be removed or reduced. I urge you to propose and amendment so there is a duty to:

  • Ensure the new care package provided by the receiving authority must be equivalent to the existing care package, provided by the first authority.  

Together these amendments will help make the Care Bill better for disabled people and help make independent living a reality for me and other disabled people.

Can you please let me know what action you will take and what amendments you will be proposing and supporting.

Yours sincerely,

 

 

 

 

 Posted by at 16:36
Nov 292013
 
DPAC Logo with text underneath "Disabled People Against Cuts" and then web address dpac.uk.net

Please write to your MP urgently, asking them to save the Independent Living Fund which exists to help disabled people who need the highest levels of support. You can contact your MP easily through this website: www.writetothem.com.

Below is a message and links to a video from Mary, who is directly affected by welfare cuts. At the end of this email is a template you can use when writing to your MP.

Dear friends,
I’m writing to let you know about an emergency that is happening to disabled people in the UK right now as you read this email.

Some of Britain’s most disabled people – including me – are facing losing our right to living independent lives. The Independent Living Fund is a pot of money that helps disabled people who need the highest levels of support to do more than just exist.

But David Cameron’s government has already closed the ILF to new applicants – and now he wants to stop it for the group of 18,500 people who already receive it.

That will mean people like me will end up sitting alone looking out of the window for most of the day unable to even go to the toilet. Until now, despite being severely disabled by rheumatoid arthritis and unable to walk or use my hands or arms, I’ve been able to live a fulfilling life. In 2012 I was a Gamesmaker, and I carried the Olympic torch. Now, I will be imprisoned at home, and will even have to give up my beloved dogs Jack and Molly.

At 66 years old, severely disabled, and totally human and wheelchair dependent, I have found myself looking at the deep pond at the bottom of my garden, no longer wanting to live. My weight has dropped down from 9 stone to 6 stone.

But I didn’t want to just sit around feeling sorry for myself, so I asked campaigners to make a film about me. The trailer is right here. But you can also watch the whole 15 minute film by going to https://vimeo.com/79330726

You can read my full story by going to www.mirror.co.uk/news/uk-news/ros-wynne-jones-column-mary-laver-2855221

It’s not just the ILF the whole of social care provision is in crisis. Sooner or later this will affect most of you if you become disabled or when you get older.

Disabled people are also under attack from the Bedroom Tax, from the flawed Work Capability Assessment process and ATOS’ reviled tests, from the abolition of Disability Living Allowance,from cuts to council tax benefit and Benefit Caps.

We wonder what we’ve done to deserve it. We aren’t the ones who caused the banking crisis. But it seems as if we are the ones who are paying for it.

We wanted you to know what’s happening to disabled people under ‘Austerity’, because we thought if you did you’d want to campaign with us about it.

If you do, please write to your MP urgently, asking them to save the ILF. You can send them a letter at the House of Commons, or email them via www.theyworkforyou.com.

And please forward this email to everyone you know.

Mary Laver

You could use this as a template:

Dear MP,
The government has already been found guilty of illegally deciding to close the Independent Living Fund and now have to remake their decision. I believe that closing this fund would violate the human rights of disabled people who have the highest support needs to live independently in the community. Closure of the ILF would not only force disabled people back into residential care homes but also cause the UK to breach its obligations under the UN Convention on the Rights of Persons with Disabilities.

I urge you to watch this video, which gives a very real idea of how important this fund is, and to do everything you can to save this vital fund: https://vimeo.com/79330726