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Research article
First published Fall 2002

Is Asperger Syndrome Necessarily Viewed as a Disability?

Abstract

This article considers whether Asperger syndrome (AS) should necessarily be viewed as a disability or, from a different perspective, as a difference. The author concludes that the term difference in relation to AS is a more neutral, value-free, and fair description, and that the term disability better applies to the lower functioning cases of autism. But he recognizes that disability may need to be retained for AS as long as the legal framework provides financial and other support only for individuals with a disability. A model is summarized that attempts to define in what way individuals with AS are “different”: the empathizing—systemizing model.

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1.
1. This article is based on an essay first published in Development and Psychopathology, 12, 489—500.
2.
2. The author was supported by grants from the Medical Research Council (UK), the Three Guineas Trust, the Shirley Foundation, the Isaac Newton Trust, and the James Mc-Donnell Foundation during the period of this work.
3.
1. “Persistent” here does not necessarily mean for years, but certainly for extended periods of time. Typical reports describe intense interests lasting for months, with then a switch to new, equally intense topics.
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2. Temple Grandin, at the recent Geneva Centre Conference on autism in Toronto (November 1998) said, “What would happen if you eliminated the autism genes from the gene pool? You would have a bunch of people standing around in a cave, chatting and socializing and not getting anything done!” This anecdote nicely illustrates that the genes for autism may lead to a different cognitive style that has enormous practical value in its own right (Baron-Cohen et al., 1998; Baron-Cohen, Wheelwright, Stott, Bolton, & Goodyer, 1997).
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A research assistant with Asperger syndrome working at Yale gave me another anecdote. He said, “If we are autists, you guys are heterists. The diagnostic features of heterists are making lots of eye contact, and overlooking details such as small coins on patterned carpets or car number plates.” Again, this anecdote emphasizes our differences, and raises the question in an amusing way about why one style should be regarded as a disability.

References

American Psychiatric Association. (1994). Diagnostic and statistical manual of mental disorders (4th ed.). Washington, DC: Author .
Bailey, A., Bolton, P., & Rutter, M. (1998). A full genome screen for autism with evidence for linkage to a region on chromosome 7q. Human Molecular Genetics, 7, 571—578.
Bailey, T., Le Couteur, A., Gottesman, I., Bolton, P., Simonoff, E., Yuzda, E., & Rutter, M. (1995). Autism as a strongly genetic disorder: Evidence from a British twin study. Psychological Medicine, 25, 63—77.
Baron-Cohen, S. (1987). Autism and symbolic play. British Journal of Developmental Psychology, 5, 139—148.
Baron-Cohen, S. (1988). Social and pragmatic deficits in autism: Cognitive or affective? Journal of Autism and Developmental Disorders, 18, 379—402.
Baron-Cohen, S. (1991). Do people with autism understand what causes emotion? Child Development, 62, 385—395.
Baron-Cohen, S. (1995). Mindblindness: An essay on autism and theory of mind. Boston: MIT Press/Bradford Books.
Baron-Cohen, S. (2000). Autism: Deficits in folk psychology exist alongside superiority in folk physics. In S. Baron-Cohen, H. Tager-Flusberg, & D. Cohen (Eds.), Understanding other minds: Perspectives from autism and developmental cognitive neuroscience (2nd ed.). Oxford, England: Oxford University Press.
Baron-Cohen, S., Bolton, P., Wheelwright, S., Short, L., Mead, G., Smith, A., & Scahill, V. (1998). Autism occurs more often in families of physicists, engineers, and mathematicians. Autism, 2, 296—301.
Baron-Cohen, S., & Hammer, J. (1997a). Is autism an extreme form of the male brain? Advances in Infancy Research, 11, 193—217.
Baron-Cohen, S., & Hammer, J. (1997b). Parents of children with Asperger syndrome: What is the cognitive phenotype? Journal of Cognitive Neuroscience, 9, 548— 554.
Baron-Cohen, S., Jolliffe, T., Mortimore, C., & Robertson, M. (1997). Another advanced test of theory of mind: Evidence from very high functioning adults with autism or Asperger syndrome. Journal of Child Psychology and Psychiatry, 38, 813— 822.
Baron-Cohen, S., Leslie, A.M., & Frith, U. (1985). Does the autistic child have a “theory of mind”? Cognition, 21, 37—46.
Baron-Cohen, S., & Wheelright, S. (1999). Obsessions in children with autism or Asperger syndrome: A content analysis in terms of core domains of cognition. British Journal of Psychiatry, 175, 484—490.
Baron-Cohen, S., Wheelwright, S., & Jolliffe, T. (1997). Is there a “language of the eyes”? Evidence from normal adults and adults with autism or Asperger syndrome. Visual Cognition, 4, 311—331.
Baron-Cohen, S., Wheelwright, S., Scahill, V., Spong, A., & Lawson, J. (2001). Are intuitive physics and intuitive psychology independent? A test with children with Asperger syndrome. Journal of Developmental and Learning Disorders, 5, 47—78.
Baron-Cohen, S., Wheelwright, S., Stone, V., & Rutherford, M. (in press). A mathematician, a physicist, and a computer scientist with Asperger syndrome: Performance on an empathizing and systemizing test. Neurocase, 5, 475—483.
Baron-Cohen, S., Wheelwright, S., Stott, C., Bolton, P., & Goodyer, I. (1997). Is there a link between engineering and autism? Autism: An International Journal of Research and Practice, 1, 153—163.
Bauman, M., & Kemper, T. (1988). Limbic and cerebellar abnormalities: consistent findings in infantile autism. Journal of Neuropathology and Experimental Neurology, 47, 369.
Bolton, P., MacDonald, H., Pickles, A., Rios, P., Goode, S., Crowson, M., Bailey, A., & Rutter, M. (1994). A case-control family history study of autism . Journal of Child Psychology and Psychiatry, 35, 877—900.
Bowler, D.M. (1992). “Theory of mind ” in Asperger syndrome. Journal of Child Psychology and Psychiatry, 33, 877—895.
Charman, T., & Baron-Cohen, S. (1992). Understanding beliefs and drawings: A further test of the metarepresentation theory of autism. Journal of Child Psychology and Psychiatry, 33, 1105—1112.
Charman, T., & Baron-Cohen, S. (1995). Understanding models, photos, and beliefs: A test of the modularity thesis of metarepresentation. Cognitive Development, 10, 287—298.
Clark, L.A. (1999). Introduction to the special section on the concept of disorder. Journal of Abnormal Psychology, 108, 371— 373.
Courchesne, E., Yeung-Courchesne, R., Press, G., Hesselink, J., & Jernigan, T. (1988). Hypoplasia of cerebellar vermal lobules VI and VII in infantile autism. New England Journal of Medicine, 318, 1349— 1354.
Egaas, B., Courchesne, E., & Saitoh, O. (1995). Reduced size of corpus callosum in autism. Archives of Neurology, 52, 794—801.
Folstein, S., & Rutter, M. (1977). Infantile autism: A genetic study of 21 twin pairs. Journal of Child Psycholology and Psychiatry, 18, 297—321.
Frith, U. (1989). Autism: Explaining the enigma. Oxford, England : Basil Blackwell.
Gillberg, C., & Wing, L. (1999). Autism: Not an extremely rare disorder. Acta Psychiatrica Scandinavica, 99, 399—406.
Happé, F. (1994). An advanced test of theory of mind: Understanding of story characters' thoughts and feelings by able autistic, mentally handicapped, and normal children and adults. Journal of Autism and Development Disorders, 24, 129—154.
Happé, F. (1999). Autism: Cognitive deficit or cognitive style? Trends in Cognitive Sciences, 3, 216—222.
Hart, C. (1989). Without reason. New York: Harper & Row.
Kanner, L. (1943). Autistic disturbance of affective contact. Nervous Child, 2, 217—250.
Le Couteur, A., Bailey, A., Goode, S., Pickles, A., Robertson, S., Gottesman, I., & Rutter, M. (1996). A broader phenotype of autism: The clinical spectrum in twins. Journal of Child Psychology and Psychiatry, 37, 785— 801.
Leekam, S., & Perner, J. (1991). Does the autistic child have a metarepresentational deficit? Cognition, 40, 203—218.
Leslie, A.M., & Thaiss, L. (1992). Domain specificity in conceptual development: Evidence from autism. Cognition, 43, 225— 251.
Lord, C. (1984). The development of peer relations in children with autism. In F. Morrison, C. Lord, & D. P. Keating (Eds.), Applied developmental psychology (Vol. 1, pp. 165—229). New York: Academic Press.
Lovell, A. (1978). In a summer garment. London : Secker & Warburg.
Park, C. (1967). The siege. London: Hutchinson.
Piven, J., Arndt, S., Bailey, J., Havercamp, S., Andreason, N., & Palmer, P. (1995). An MRI study of brain size in autism. The American Journal of Psychiatry, 152, 1145— 1149.
Piven, J., Bailey, J., Ranson, B.J., & Arndt, S. (1998). No difference in hippocampus volume detected on magnetic resonance imaging in autistic individuals. Journal of Autism and Developmental Disorders, 28, 105—110.
Piven, J., Berthier, M., Starkstein, S., Nehme, E., Pearlson, G., & Folstein, S. (1990). Magnetic resonance imaging evidence for a defect of cerebral cortical development in autism. American Journal of Psychiatry, 147, 737—739.
Plaisted, K., O'Riordan, M., & Baron-Cohen, S. (1998a). Enhanced discrimination of novel, highly similar stimuli by adults with autism during a perceptual learning task. Journal of Child Psychology and Psychiatry, 39, 765—775.
Plaisted, K., O'Riordan, M., & Baron-Cohen, S. (1998b). Enhanced visual search for a conjunctive target in autism: A research note. Journal of Child Psychology and Psychiatry, 39, 777—783.
Richters, J., & Cicchetti, D. (1993). Mark Twain meets DSM-III-R: Conduct disorder, development, and the concept of harmful dysfunction. Development and Psychopathology, 5, 5—29.
Spitzer, R. (1999). Harmful dysfunction and the DSM definition of mental disorder. Journal of Abnormal Psychology, 108, 430— 432.
Swettenham, J., Baron-Cohen, S., Charman, T., Cox, A., Baird, G., Drew, A., Rees, L., & Wheelwright, S. (1998). The frequency and distribution of spontaneous attention shifts between social and non-social stimuli in autistic, typically developing, and non-autistic developmentally delayed infants. Journal of Child Psychology and Psychiatry, 9, 747—753.
Tager-Flusberg, H. (1993). What language reveals about the understanding of minds in children with autism. In S. Baron-Cohen, H. Tager-Flusberg, & D. J. Cohen (Eds.), Understanding other minds: Perspectives from autism (pp. 138—157). Oxford, England: University Press.
Wakefield, J.C. (1997). When is development disordered? Developmental psychopathology and the harmful dysfunction analysis of mental disorder. Development and Psychopathology, 9, 269—290.
Wing, L. (1988). The autistic continuum. In L. Wing (Ed.), Aspects of autism: Biological research (pp. vii—viii). London: Gaskell/ Royal College of Psychiatrists.
World Health Organization. (1993). International classification of diseases (10th rev., criteria for research). Geneva: Author.